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Congratulations, Lori, you give the rest of us inspiration .
I would also recommend having your adrenals tested (saliva test). All the symptoms you mentioned can be attributed to adrenal fatigue. Dr. O talks about it somewhere on this site. The long-term stress of exposing your body to gluten and other allergens can fatigue or exhaust your adrenals, and they are one of the last organs to heal after eliminating the offending agents. Adrenal fatigue can be treated with supplements (mild cases) or hydrocortisone tablets.
Hi, Patricia, and welcome! Going grain-free and dairy-free took care of my snoring which was driving my husband crazy. I've also had no asthma symptoms and have been able to stop my steroid inhaler. I hope it helps you in this area also! Martha
i'm not sure if anyone is still looking for an answer to this question, but Elana Amsterdam (The Gluten-Free Almond Flour Cookbook) says that you must raise the liquid you are trying to thicken to high and then mix in the arrowroot slurry or paste until “well integrated and the mixture on the stove completely thickens.”June 2, 2011 at 8:55 am in reply to: True Gluten Free bread is at Whole Food Sugar Land, Tx store #9171
Two further thoughts – the Against the Grain website has a store locator by state that may help you find the products. Also, a friend of mine in Michigan was able to get a local cafe owner to order some of the products from her distributor. My friend had to buy they in bulk, but they were cheaper than what I can find retail.June 2, 2011 at 8:18 am in reply to: True Gluten Free bread is at Whole Food Sugar Land, Tx store #9170
The Whole Foods in Sugar Land is carrying the “Vermont Country” Rolls from Against the Grain. They are DAIRY FREE. The ingredients are Tapioca starch, organic coconut milk (with guar gum), whole eggs, non-GMO canola oil, water, molasses, sesame seeds, flax seeds, salt, cocoa, and poppy seeds. The ingredients that Jean listed above are for the “Original Brand” rolls. It's good to see that this company is making some dairy-free items also. Their website is http://www.againstthegraingourmet.com. Unfortunately, they do not do online ordering.
The one I just received expires in September, 2011.
Life Extension is now offering a cruciferous vegetable soup that fits the bill. The only downside is that it is not organic, but it is ready-made and good in a “food emergency.” http://www.lef.org/Vitamins-Supplements/Item01089/Life-Extension-Cruciferous-Vegetable-Soup.html for the regular or http://www.lef.org/Vitamins-Supplements/Item01090/Life-Extension-Asian-Cruciferous-Vegetable-Soup.html for the Asian flavor.
Start by watching the videos on this website. Dr. Osborne does an excellent job of expaining what a true gluten-free diet is and how to get started. Other posts on this forum are helpful also. Starting a food diary may help you to identify other foods that are hurting you.
I can relate to your frustration!! Hang in there and get all the information you can. Sticking faithfully to your diet is very important if you want to get well. Good luck!
What kind of doctors have tested you for adrenal fatigue? Traditional doctors do a stimulation test that will be abnormal only when the adrenal gland is severly non-functioning. Anything else they would consider normal. Non-traditional practitioners will use a saliva test to measure your levels of cortisol during the day (usually 4 times). Those levels can then be used to see how well your adrenal gland is functioning (or whether it is in the early stages of fatigue which shows hyper-functioning). Mild adrenal fatigue can be treated with certain supplements. More severe cases can be treated with prescription hydrocortisone. Overall stress on your system leads to adrenal fatigue. The stress can be from lifestyle or from food and environmental allergies/sensitivities. Proper treatment can make a world of difference, and I would encourage you to find someone who can test you properly.
I have LOTS of experience with delayed sensitivity testing and rotation diets. I've had both ALCAT and Immunolabs several times over the past 3 years. They all initially made me feel better and then gradually over a period of 2-3 months I would start reacting to the foods I was eating even though I was rotating as prescribed. I think there were a couple of issues at play here.
First, I was not grain-free. If rice and corn were okay on the test, I would eat rice and corn. What I understand now is that by doing so I was continuing to aggravate the leaky gut rather than help it heal. Google “zonulin” to get a better understanding of the cause of leaky gut. Zonulin is now believed to be the protein that regulates gut and brain permeability. Gluten from ANY grain interferes with zonulin's ability to do it's job. The grains give you leaky gut in a way that the ALCAT test doesn't measure. That is why rice and corn appeared to be “okay” for you when really they're not. The ALCAT test's “positive” result for gluten is just showing that you have absorbed this protein and your body has recognized it as foreign. According to Dr. Osborne, other substances that can interfere with zonulin (independently of whether you “react” to them or not) are dairy, soy, and peanuts (actually all legumes, but peanuts are the worst offenders). So, if you are trying to heal a leaky gut, avoiding these foods, at least in the short term, would be helpful. And definitely continue to follow the True Gluten-free diet.
Second, the ALCAT and Immunolab tests are not the most reliable tests out there, but since you have had it done, go with the results. Watch out, however, for reactions to other foods. If you ever decide to be tested again, the ELISA/ACT Biotechnologies test is the one recommended by Dr. Osborne for the best accuracy.
I am beginning to think that if you are truly gluten, dairy, soy, and peanut free so that your gut can heal, and if you avoid your “sensitive” foods while your gut is healing, then there is no real reason to rotate the foods that you CAN eat (Dr. Osborne, chime in here if this thinking is faulty). If you find that your gut is not healing despite this regime, then there are other things out there that you can do to promote the healing of the gut (so I've been told by Dr. Osborne–I'm not sure what those things are). I've been following this protocol for about 2 months now and i'm continuing to feel immensely better – a record I never achieved on the ALCAT diet alone.
Yes, I've had experience with NAET. A little over a year ago, I was as desparate as you sound. It seemed I was reacting to everything I ate (headaches, asthma, GI symptoms as well as a host of other things). I had been tested several times for food sensitivities (Alcat and Immunolabs) and had been following all kinds of rotating diets without success. Interestingly, I have always tested negative for gluten sensitivity by antibody tests and small bowel biopsy. When I saw the NAET practitioner, I was limited to Metagenics “medical foods” and a few vegetables (alas, the “medical food” is all rice-based!). I tried NAET on the recommendation of a friend who had had some success although it didn't last for her.
When I first saw the NAET practitioner, I noticed that my stomach was calmer, but not much else. I was, however, able to reintroduce a wide variety of foods as long as I continued to be treated. I never was symptom-free, though. I continued with asthma symptoms and headaches. I stopped treatment in the summer as we traveled to New York, and all my symtoms came back within a matter of weeks. So, bottom line is that it didn't last for me – a similar result that the friend who suggested it also experienced.
I've now been grain and dairy-free for about 2 months and I'm feeling as well as I have in years. The headaches are gone, and I've been able to stop my steroid inhaler. I hope you have similar good results with your grain-free diet!