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I actually just found some info on a Paleo website that I believe answers my question. You can read the info at the site. The link is: http://www.thepaleomom.com/2012/10/gluten-cross-reactivity-how-your-body-can-still-think-youre-eating-gluten-even-after-giving-it-up.html
Maybe Dr. O can let us know if this info is correct and valid.
What is your opinion on the Cyrex Labs Test #4? It would seem that the portion of the test that deals with determining whether or not you are having cross-reactions to corn and other grains wouldn’t be all that accurate, since our problems are with the gluten proteins in the grains. Is this right?
There’s no test available right now that tests all of the different gluten proteins in grains, right? If there was, I guess we could eat whatever grains had absolutely no effect on us while staying away from wheat gluten and whatever other grains that did cause us problems.
JeffMarch 24, 2012 at 12:01 am in reply to: This site is taking forever to load now, anyone else having this issue? #9799
Same here. Everything on the site is slow, from browsing the different topics to replying to others.
For shampoo I’ve been using Desert Essence Coconut Shampoo. It’s listed as 100% Vegan and certified organic. It says it has no wheat or gluten in it. I found out today it has a couple of ingredients in it that says they were derived from corn. That sucks….corn is in so many products out there that you can hardly keep track of it Guess I better go back to the health food store and find another brand. You can read about this shampoo at http://www.desertessence.com
For toothpaste, I’ve been using Dr. Mercolas Natural fluoride free toothpaste with Tulsi and tea tree oil in it.
Check Dr. Mercolas website. He makes a liquid B12 supplement in a convenient pump spray bottle. It’s called B-12 Energy Booster, and is listed as 100% all natural.
Sorry to hear you’re suffering from the same stuff I am. I know occasionally I still eat something that does not agree with me and I don’t feel real well afterwards. It sometimes makes me feel fatigued, gassy, foggy-brained, etc. It sometimes makes my heart beat even faster and harder than it already does, which is already very annoying. I know these are also symptoms of my Hashimotos. I still think I should get on some good dessicated or specially compounded thyroid medicine, at least until I can get my stomach and intestines back in good health which I hope will help correct my thyroid problems. It just seems crazy to keep suffering from this thyroid condition needlessly while I’m going through the rest of my healing process. I know I have recently cut out all grains, so I know it will be a while until I am better. I didn’t get this way overnight, so I can’t expect it to go away overnight either. It may be time to have another food sensitivity test done, like ALCAT or Elisa ACT, since it’s been a while. Maybe something else is bothering me and causing inflammation, which will just keep my Hashimotos from ever healing.
Lets all hang in there and beat this thing!
Thanks Rita. This is a very good suggestion. I think I’ll be calling Dr. O very soon. In fact, I’ve actually thought of driving from Arizona to his office in Texas, since he understands so much about so many health issues. He obviously cares a great deal about all of us, or he wouldn’t be doing all the work he does concerning getting the word out about the destructive properties of gluten.
I’ve been going through the same thing. Some supplements make me feel worse right away, and some later. It’s hard to know which ones are the culprits if you take a lot of them each day. I also have a cabinet full of supplements, and 2 bags of ones I can’t use anymore in my garage. What a waste. I do know one thing for sure, “Trial and error” can mean lots of unnecessary suffering. Better to go to a well trained professional and have him tell you what your body needs, and then get them from a good reputable source, like Dr. O’s site.
I’ll check into the B-12 issue. I have read in a couple of places that vitamin deficiencies like B-12 and Vitamin D can be really bad for people. I know magnesium deficiencies are also pretty bad too. I will be going to a functional medicine doctor here in Arizona in a few days to have a lot of testing done. I’ll have him checking thyroid function, vitamins and minerals, etc. I know that recently I’ve been concerned about whether or not some of the supplements I’ve been taking contain any forms of gluten. I guess I’ll have to just order all of my supplements from Dr. O’s site to make sure they’re safe.
Thanks again for the reply.
I will definitely hang in there, and I hope you and your wife do the same as well. I really need to get well soon, because I always thought that would help those around me to better understand and believe in what I’ve been trying to tell them about the horrible effects of gluten. My younger brother who is in his mid forties is already on cholesterol medicine, blood pressure pills, anti-inflammatory pills, antacids, and diabetes medicine! He keeps going to all the regular doctors who, just like you said, keep giving him one pill after another. They would lose a lot of money if they fixed him up by making sure he ate a good diet. My older brother also has a lot of health issues as well, but I just can’t seem to get through to these guys. Maybe someday they will listen, because I’m sure they have some of the same gluten related genes that I have. I just hope it won’t be too late. Like you said though, it’s their health they have to live with. I can’t force them to be well.
Nice post. I too have Hashimotos. I was dignosed with hypothyroidism quite a while back, but just a few months ago the diagnosis for Hashimotos was given. I also have a couple of small nodules on my thyroid revealed by an ultra sound test. Sadly, instead of getting the help I needed, regular doctors just put me on anti-depressants, sleeping pills, and anti-anxiety drugs, all of which made things much worse. I haven’t taken any medication for Hashimotos at all, thinking I could figure out the under-lying cause and it would go away. Needless to say, I’ve been walking around with Hashimotos for a really long time now, and it’s a very, very miserable existence I started on a traditional gluten free diet a while back, but just recently decided to get serious and go true gluten free. I’ve been following the Paleo Diet about 90-95% of the time, but it’s time to move that up to 100% if I ever truly want to get well. I had a test done by ALCAT to determine foods I’m sensitive to, so I could remove them from my diet. The list was very long, and I’m sure gluten had a lot to do with it. I’m also following the Jeff McCombs plan for dealing with Candida, and have done lots of cleanses, like liver, parasites, metals, etc. Until I cut out all grains though, I probably will never get better. I also need to get on Naturethroid or Armour for now until I can get better, or I will never feel good again. Thanks for the info on Dr. Datis Kharrazian’s website. This makes perfect sense to me now.
Best wishes to you in your quest for healing.
Thanks for the reply, Redbird. You are right, I need to completely stay away from all grains, soy dairy, legumes. etc. or my auto-immune hypothyroid problems will never clear up, and may even get worse. I just have to keep reminding myself how toxic glutens are, and to stop thinking small amounts here and there probably wont hurt me, because over time, they will, and have. You are right about all of the sick and obese people in this country, and when I see these people, I often wonder how many are sick due to glutens. Probably most of them. It also doesn’t help with all the so-called studies out there like you said that promote things that are bad for us and try to steer us away from things that aren’t. My wife is from the old school, and still says I don’t feel good because I’m not eating a balanced diet because I’m not consuming lots of grains, like the food pyramid says I’m supposed to. Sadly, sometimes my wife is my worst enemy and biggest hinderence in my quest to be totally gluten free. I know it’s going to be a long tough road ahead, but I will definitely make sure I’m up for the challenge. My future depends on it. No more eating a 90-95% Paleo Diet, because the 5-10% part can cause me a lot of damage and suffering. It’s time to be “All in”.
Thanks again, and have a good day.
I think your reply was just what I needed. Sometimes being scared in to doing the right thing is much needed. I’ve known about being Hypothyroid for a while now, but only found out about Hashimotos a few months ago. I kept believing the Hashimotos was a symptom caused by an under-lying problem. I too now believe like you that gluten is at the root of my health problems. I so believed I could figure it out and correct the problem, so I never did take any medication like dessicated Naturethroid or Armour, since I’ve read that regular T4 only meds will pretty much leave you sick and may even make you worse. I think I’ll go on the meds until I can get this all sorted out, because being Hypothyroid and not treating it is extremely miserable! I’ve recently read where some Hypothyroid patients had thier problems clear up to where they could either cut back on, or completely stop taking thier thyroid medications after being truly grain free. You are right, it’s time to do this and never look back. I have some loved ones now that are sickly, and have also lost loved ones to diseases that I believe were probably caused by, or at least made worse by gluten, because I’m sure they had at least some of the same gluten genes that I have.
It’s also tough watching my 3 kids and wife still consuming gluten filled foods on a regular basis. I see problems starting to show up in them that I know are coming from gluten, but they keep ignoring my warnings.
You are right, the healing will probably be slow, but the results will be well worth the effort. Let’s both hang in there.
Thanks again and best wishes.
Thank you Lori.
I was just kind of wondering what it meant in terms of how gluten sensitive I really am. All of the other tests are inconclusive, but the genetic tests say I have one gene for celiac and one gene for gluten sensitivity. I guess this means I probably need to avoid gluten all the time, huh? I was recently diagnosed with auto-immune hypothyroidism (Hashimotos), and I’ve been fighting candida problems for a few months too. Maybe gluten is playing a role in this. I just recently have started trying to be on the true gluten free diet, instead of the traditional one, so maybe things will get better soon. I hope so, because I still don’t feel to well these days at all. It’s just so hard trying to figure all of this out, and trying to figure out what has caused what to go wrong with my health.