Home of Gluten-Free Society Forums Welcome New Members! – Please Introduce Yourself Why are Some Doctors Scared of Gluten Sensitivity?

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  • #8238
    Kate OsbornePeter Osborne
    Keymaster

    Gluten Sensitivity – Does it Exist?

    A recent paper was published based on an interview done with Dr. Stefano Guandalini of the University of Chicago Celiac Research Center.  The article stated that gluten sensitivity is not a real issue, and that most people going gluten free are simply following a public trend.  The article states that going off of gluten can be dangerous for those without celiac disease (This last statement is absolutely ridiculous.)

    Now I know that this angers many of you.  The arrogance and ignorance of such statements is appalling.  Especially considering the amount of people with gluten sensitivity issues as well as the amount of scientific evidence validating the condition.  Take heart and remember the following:

    All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self-evident.

    Currently we are in the first two stages.  Ignore the naysayers.  Remember that most medical doctors don’t even study nutrition.  That being said, how can they be qualified to comment on a spectrum who’s origin is nutritional?  The time of ignoring the power of food as a contributing cause in health and disease is coming to an end.   The time of doctors calling their patients crazy because the flawed lab test they are using comes back normal is at an end.

    The Gluten Sensitivity Spectrum

    The following picture displays some of the more common manifestations of gluten induced diseases. Problem is, many people, doctors, nutritionists, and the media are mostly in the dark when it comes to the different diseases linked to this food protein.

    Different manifestations of gluten induced damage

    The following is an abstract from a recent paper published in the journal, Rev Neurol. 2011 Sep 1;53(5):287-300.

    Gluten sensitivity is a systemic autoimmune disease that occurs in genetically susceptible individuals on ingesting gluten. It can appear at any age, then becoming a permanent condition. It is more frequent in women, as happens with other autoimmune diseases. Celiac disease is the intestinal form and the most important manifestation among a set of gluten-induced autoimmune pathologies that affect different systems. Neurological manifestations of gluten sensitivity, with or without enteropathy, are also frequent, their pathogenesis including an immunological attack on the central and peripheral nervous tissue accompanied by neurodegenerative changes. The clinical manifestations are varied, but the most common syndromes are cerebellar ataxia and peripheral neuropathy. Finally, gluten sensitivity is associated to a varying degree, with other complex diseases and could influence their evolution. The early detection of cases of gluten sensitivity with neurological manifestations and subsequent treatment with the gluten-free diet could provide remarkable benefits to the patients.

    Dr. Osborne's CommentsThis research study is just another study of an ever growing list of medical research documenting the existence of gluten sensitivity in the absence of celiac disease. Why is this important? Most doctors don’t know the difference. Most doctors aren’t aware that gluten can contribute to hundreds of symptoms, syndromes, and diseases. Many of these symptoms manifest not in the gut, but in other tissues and organs.  If you know a doctor who needs educating, please inform them that Gluten Free Society now offers an online certification program.  This course is a 2 part, 10 hour class on what they need to know.  Don’t let a doctor tell you that you are crazy or that the disease is all in your head.  Below is a list of some of the common ways gluten can affect you.

    Common examples of gluten related conditions are:

    If gluten has affected your health in ways not linked to the intestine, share it with us below on facebook.

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    #9727
    Norbert Banaszak jrredbird
    Member

    I had found the University of Chicago website several months ago and signed up for their mailings and thought their staff was fully into this Gluten problem but I also was just beginning to understand and thought this was strictly a Celiac issue.  It seems that Dr. Guandalini gives “different” viewpoints on anything outside of Celiac Disease depending on who he talks to? I've seen some sites where he seems to agree with Gluten Sensitivity outside of Celiac and some cases where he doesn't.  He does seem to be consistant about folks avoiding the GF diet unless they have Celiac and get villi damage.  His opinion about vitamin deficiency because of the GF diet is based on his erroneous mindset that all GF diet folks are all going to “substitute” the GF foods instead of avoidance.  I read another article where Dr. Guandalini and Dr. Fasano both are behind the push for the 20 ppm “gluten free” standard by the FDA and Dr. Guandalini states that the customary CD patient can eat at least a pound of food each day containing 20ppm without harm???  Total stupidity in my opinion, my wife and I both respond to just a trace of hidden gluten in salad dressing, etc.  I did read a Gov't FDA report where they are of the opinion that CD/GS folks need to get no more than 1ppm in a GF food and due to the lack of reliable testing at that level are considering a new label stating- “Low Gluten”.    I also read an article where he is “helping” some of the GF food processors with their GF agenda and sounds to me like he has lost credibility, at least in my view.  I will stop receiving the e-mail and newsletters from the Univ. of Chicago and I'm sure they won't miss me.

    An interesting article I would like to share by Dr. Rodney Ford, a New Zealand  Pediatric Gastroenterologist of many years and he is adamant that GS/CD is totally a Brain/Neurologic Disease that causes all the other symptoms and diseases. I would like to know what Dr. O thinks about Dr. Ford's findings?  I know that I was having terrible Brain chemical issues before going GF and they disappeared quickly along with the frequent diarrhea within just a few days.

    http://www.celiac.com/articles&#8230;..Page1.html

     

    #10049
    Stephanie SherieStephanie Sherie
    Participant

    I asked our local allergy specialist if she did sensitivity/intolerance testing on foods.  Nope!  They only test (insurances covers) for acute allergies. 

    So sad. :-(

     

    Think of how many people are suffering and will only get worse until they have a full blown allergy.

    What is the 10 hour course?

    And, if the gluten society meetings additional video training to the ones already here on the membership forum?

    #10059
    Kate OsbornePeter Osborne
    Keymaster

    Hi Stephanie,

    The 10 hour course is an advanced class to help health care practitioners understand diagnosis, lab testing, symptoms, and much more related to gluten sensitivity.  Those who take the course and pass the essay portion afterwards become certified as gluten free experts.  The Gluten Free Society meeting videos go above and beyond the other videos and discuss advanced tips and tactics for health restoration.

     

    All the best,

    Dr. OSmile

    #10060
    Kate OsbornePeter Osborne
    Keymaster

    @redbird said:
    I had found the University of Chicago website several months ago and signed up for their mailings and thought their staff was fully into this Gluten problem but I also was just beginning to understand and thought this was strictly a Celiac issue.  It seems that Dr. Guandalini gives “different” viewpoints on anything outside of Celiac Disease depending on who he talks to? I’ve seen some sites where he seems to agree with Gluten Sensitivity outside of Celiac and some cases where he doesn’t.  He does seem to be consistant about folks avoiding the GF diet unless they have Celiac and get villi damage.  His opinion about vitamin deficiency because of the GF diet is based on his erroneous mindset that all GF diet folks are all going to “substitute” the GF foods instead of avoidance.  I read another article where Dr. Guandalini and Dr. Fasano both are behind the push for the 20 ppm “gluten free” standard by the FDA and Dr. Guandalini states that the customary CD patient can eat at least a pound of food each day containing 20ppm without harm???  Total stupidity in my opinion, my wife and I both respond to just a trace of hidden gluten in salad dressing, etc.  I did read a Gov’t FDA report where they are of the opinion that CD/GS folks need to get no more than 1ppm in a GF food and due to the lack of reliable testing at that level are considering a new label stating- “Low Gluten”.    I also read an article where he is “helping” some of the GF food processors with their GF agenda and sounds to me like he has lost credibility, at least in my view.  I will stop receiving the e-mail and newsletters from the Univ. of Chicago and I’m sure they won’t miss me.

    An interesting article I would like to share by Dr. Rodney Ford, a New Zealand  Pediatric Gastroenterologist of many years and he is adamant that GS/CD is totally a Brain/Neurologic Disease that causes all the other symptoms and diseases. I would like to know what Dr. O thinks about Dr. Ford’s findings?  I know that I was having terrible Brain chemical issues before going GF and they disappeared quickly along with the frequent diarrhea within just a few days.

    http://www.celiac.com/articles/1085/1/Gluten-Causes-Brain-Disease-By-Prof-Rodney-Ford-MB-BS-MD-FRACP/Page1.html

     

    Hi Redbird,

    Dr. Ford is an excellent physician and expert in gluten sensitivity.  His information about gluten as a neurotoxin is spot on.  However; gluten has poisonous effects beyond what occurs to the nervous system.  A perfect example is what gluten does to the small intestines.  The production of intestinal permeability is not a nervous system issue, but an issue where gluten impacts a protein that keeps intestinal cells from drifting apart. 

    All the best,

    Dr. O

     

    P.S.

    Have you listened to the interview between myself and Dr. Ford?  If not, you can check it out here:

    http://www.glutenfreesociety.org/gluten-in-dairy-products/

    #10071
    Stephanie SherieStephanie Sherie
    Participant

    These interviews w/Dr. Ford are GREAT!

    I even called one of our local top notch neurologists and his nurse called back saying the Dr. said “He has no experience with this.”  WOW!

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