Gluten-Free Society Home › Forums › Welcome New Members! – Please Introduce Yourself › So many questions

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  • March 31, 2011 at 10:53 pm #7972
    Barb DonleyBarb Donley
    Member

    Hi

     I am new, not diagnosed with anything but wheat allergy (and chronic IBS, Fibro, multiple allergies. ad infinitum).  And since everything calms down when I am off wheat, rye and oats, I feel certain about the non-celiac glutensensitivity part.  I was looking into the genetic tests, since biopsy and blood test were negative.  Then I read about a connection between iodine and celiac- so I have always reacted to iodine- it has given me a rash on my arms, or makes me itch.  Hmm since I went GF those little hot patches of excema I have always had are gone.  Makes me wonder about dermatitis herpatiformis.  Do you know if there is a DIY test on the market? I think my whole family is affected and my head spins to think I need to get all those “other” grains out of everyone's diet.  We were all “better” but still with issues on standard GF.

    It is encouraging to know there are others struggling with the same issues–and getting better.

    Barb

    April 1, 2011 at 7:36 am #9083
    Peter OsbornePeter Osborne
    Keymaster

    Hi Barb,

    Welcome to the forum. If you are referring to a do it yourself test for diagnosing gluten sensitivity, genetic testing is the most accurate way to go.  The kit is mailed to your house and all you have to do is give a cell sample (cheek swab).  Results are emailed back to you. The only other DIY kit is to remove gluten from the diet and see if you feel better.

    All the best,

    Dr. OSmile

    April 1, 2011 at 11:08 pm #9088
    Barb DonleyBarb Donley
    Member

    Thanks for the reply. I know I have to do something.   In a worst case scenario, without the “authority” of a test, I don't think I could get gluten-free meds if the situation required.  I appreciate all your help and information.

    Barb

     

    April 2, 2011 at 8:20 am #9089
    Lori Quandtfarmwife67
    Member

    For me getting testing drove home, that this is a life style for me now. (Not just a fad) I knew deep down in I would be positive but, getting that paper to read proved to me I need to ALWAYS eat this way and never sway. It also helps when people make comments about how do you KNOW you have to eat gluten free. Now I can say because I tested positive. I don't know why people care how I eat but some do.  Not that I really care what they think, but  it's nice to be able to prove to them why I do what I do.  Good luck and keep up the fight, it is worth it!

    Lori

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