Gluten-Free Society Home Forums Welcome New Members! – Please Introduce Yourself Perhaps I have discovered the reason behind “Sues Syndrome”

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    Peter Osborne

    Hello everyone, I have been searching for something to explain all the seemingly unrelated symptoms I have experienced for 8 years. I have gone through 7 MD’s, 6 naturopaths, an allergist, a functional medicine MD, endocrinologist, chiropractors and physiotherapists. No one can figure out what is wrong with me.

    I coined the phrase “sues syndrome” and it encompasses the following: Chronic itchy skin/mucus membranes, insomnia (due to overheating and/or stomach pain), burning pain lower legs/R abdomen, muscle tighness/knots (requiring Intramuscular stimulation&massage weekly), blisters to end/sides tongue, rheynauds, compartment syndrome/fasciotomies lower legs, virtually no cartilage left under patellas, migrating bone pain…

    In the past couple of years I have been diagnosed with autoimmune thyroid, chronic dry eye syndrome (on restaysis), cataracts & osteopenia  (both dx at 45 years old!),  poor LTM/STM and fibroids. 

    I have had a CT abdomen, MRI brain, autoimmune blood work, X-rays that are all “Normal”

    The only blood work that comes back out of range is: low secretory IgA stool 15.4, low iron, high B12, Low TSH .20, Low free T4/T3 (despite desiccated thyroid hormone).

    Do you think my symptoms could be  gluten driven?

    I have been listening to videos and realized that fact that my dad had ulcerative colitis (died at 49 complications) and his mom had rheumatoid arthritis perhaps puts me at risk for  autoimmune disorders.


    Peter Osborne

    Hi Sue,

    Welcome aboard.  Many of your symptoms can be gluten driven.  The first step you should take (if you haven’t already) is to eliminate all the grain from your diet.  If you are eating the gluten free substitutes, you will most likely continue to have problems. 

    All the best,

    Dr. OSmile

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