January 14, 2013 at 10:29 am #8441Carol BauerMember
This might be a little long, sorry. My name is Carol and I have four children but one was really having problems from irregular EEG (constant spikes but no seizure activity), shortness of breath, chest pain (cleared by cardiologist), stomach pain, moodiness, always tired, blackout vision and the list goes on. She had a period of severe depression after being put on a med for migraines and seizures (that she was not having) and several years where she was never without a headache. Many doctor visits with no answers and everyone saying that she was manifesting these symptoms and that she was still depressed, I needed to take her to a doctor and get her put on meds. No way was I doing that since every med she has been put on she ends up with several of the rare side effects.
We saw a friend of ours during the time of the depression who suggested putting her on a gluten free diet which we tried but at the time my daughter was 11 and fought tooth and nails and it made things worse so we stuck with just reducing the amount of gluten in her diet, or so I thought because she was still eating rice and oats with no restrictions. As a baby she was always constipated. She was mainly breast feed but on occasion it was nice to be able to give her a bottle of formulas. She would spit normal formula right back out. We found one formula that for babies with sensitivities that cost 3 or 4 times the amount of regular formula so it was rarely used. Then when it came to introducing foods she had an issue with the baby cereals and then the traditional cherrios. These she would spit right back up. It seemed as she got older she out grew these allergies and was find with grains. My daughter is now 14 she was tested for celiac disease and it came back negitive so we did the DNA testing. She knew she felt better if she followed the standard gluten free diet but was in denial and needed proof so that is why we did the testing.
The results shows that she has two copies of the same gene allele (HLA-DQ2) and also tested positive for DQ3 and DQ1, so she really needs to go on a true gluten free diet. Knowing that for her to have two positivies on the same gene allele means that both my husband and I have the gene, which also means that our other three children have at least one gene and would benefit along with my husband and I from a gluten free diet. I have been following a pretty healthy diet for several months prior to the holidays (going to school to be a health coach) and I saw almost all of my symptoms of Myofacial Pain Syndrome go away. During November and December my daughter was at a lot of doctor visits with symptoms, I almost went blind, we had a death in the family and we remodeled our entire first floor along with having damage done by Storm Sandy so our house has had a lot going on and we got off track. Now it is time to get back on track and stay on track. My daughter has missed at least one day of school a week so far this year and that is about to stop. I know this is not going to be an easy road but I think it has also helped me decide who my ideal client is going to be with my new holistic health coaching business.
I have a lot to learn and can’t wait to get started first in healing my family and then in healing the world.January 14, 2013 at 11:32 am #10226Tricia RobitailleMember
Welcome Carol! I know how it can be difficult to follow a gluten-free diet. I hope your daughter and all of you really will be able to stay on track and feel great! Best of luck with your health coaching business!
TriciaFebruary 5, 2013 at 4:39 pm #10239Peter OsborneKeymaster
Thanks for sharing! You have the attitude of a Gluten Free Warrior. Heal your family, then heal the world!!
Keep us updated on your progress.
All the best,
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