January 2, 2013 at 11:36 am #8437
Hi my name is Roberta Bylski and I have been sick my whole life (almost 50 yrs now). I went on a gluten free diet 4 yrs ago, when my daughter began having issues and was told to go gluten free. I suffered digestive (gastrointestinal) issues my whole life, also brain fog (know now what it was).
over 20 yrs ago diagnosed with fibromyalgia after the births of my children (now, twin 26 yr old sons and a 25 yr old daughter. Had vertigo so bad, I literally had to crawl around the house chasing 3 toddlers. After numerous doctors and test only to be told I was healthy, there was nothing wrong with me, I started massage therapy and chiropractic care (bad neck)to keep me out of bed and barely functioning. I suffered in silence until going gluten free. 36 hrs after going gluten free, my whole life changed. It was like someone gave me a muscle relaxant and a nerve suppresent without the drugs and I felt like I had just woken up from being asleep my whole life. Things were so crystal clear and I could focus on things, like a tv program. I would say 85% of all my symptoms disappeared immediately. There were other things preventing me from feel 100% but I could not pinpoint them.
After getting really sick a little more than yr into the gluten free diet, I developed severe systemic candida after having to go onto antibiotics, I took myself off them after 2 pills, severe reaction to them. Was tested in Sept. ’12 for 130 foods and 20 chemicals for sensitivities (MRT-LEAP test) and was then diagnosed with Multiple food/chemical sensitivities, leaky gut/systemic candida. This was all after feeling sick while growing up and I forgot to mention that I am also a 11-1/2yr, 89%estrogen receptive, breast cancer survivor. Which I know the surgeries/chemo/cancer treatments made things worse.
This is a little background info, but my question is this,
is there anyone else out there who is fighting leaky gut/candida/multiple food and chemical sensitivities and having to try to find food sources to substitute suppliments because of reactions to what is in them? I have very limited foods I can eat, even though I have purchased all Dr. O’s cookbooks, on line, there are not many I can use due to the sensitivities, I have including spices, or it feeds the candida. I feel like I am in a no win situation here and would just like to know if anyone else is or has been in this same boat.
Any help or information would be welcomed and appreciated!
Thank you in advance,
RobertaJanuary 2, 2013 at 1:24 pm #10190
So sorry to hear your troubles but glad that going gluten free helped so much, I ma just new here to and put a post up introducing myself a few hours ago. I can relate to you a little as my daughter has leaky gut and food/chemical sensitivities. Actually for her there is no safe food she will be sick , if she eats.
Now I am no doctor nor medical qualifications so I can only give you my experiences.. with my daughter we have done GI testing we did GI effects with Genova labs , that turned up parasite , one they say is a sort of a passer through, the other blastocystis hominis also a bad bacteria Campylobacter sp.The plam is to fully open all pathways of detoxification and we are looking at the best protocol to kill these off. It is being suggested that drugs will be the only route but we are looking at zappers etc.
After that we intend to heal the gut then look to taking out heavy metals. Have you been tested for them , again I ma not an expert but given your history I would suggest you look into that , Dr Buttar and there are lots of others that are starting to highlight this area. I think it could be a valuable area to research and try testing for..just my two pence. Hope this helpsJanuary 4, 2013 at 8:46 am #10192
I got tested for food intolerancea and 11/60 of the things I had been eating I was intolerant to. I began a rotational diet. I eat things I am “intolerant” to, but only every 4 days. This really seems to be helping.
I hope this helps,
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