This topic contains 10 replies, has 6 voices, and was last updated by Rita Bray Rita Bray 8 years ago.

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  • #8095
    Diane Zides
    Diane Zides
    Member

    My test shows no leaky gut. I don't understand how that could be since I'm gluten/dairy intolerant, have Candida, and my IGg Elisa food panel test showed intolerance to many other foods, some of which I don't eat often. Is the test wrong, or is it possible I'm not ill enough to have that kind of damage?

    #9341
    Jacqueline Scarbrough
    Jackie Scarbrough
    Participant

    Diane, what test did you have done?  Maybe you just haven't progressed to the point where your gut is leaky yet….?

    I am so glad about the special focus on leaky gut this week.  I have read so many testimonials about people who feel drastically better after going gluten free or grain free or paleo (or whatever) and those of us who don't start wondering “WHY not me!?”  As trying as it is at times to stick to this lifestyle and as careful as you have to be, it can be discouraging when you still do not feel good.  But the descriptions of leaky gut are very helpful and make it all make sense.  It's nice to know that even though it may be a slow road, the healing will eventually happen with the proper treatments. 

    The test I had done was a called a comprehensive digestive analysis, it was very helpful.  It showed that I did not have Candida (much to my surprise but I had already been on a very restricted diet for close to a year) but basically found out I had no beneficial bacteria and no digestive enzymes.  I had unwantedly lost about 30 pounds and developed dozens of food intolerances in addition to grains, sugar, dairy, and soy (that was of course a seperate test).  I had no energy and was having mood swings and very irritable.  I'm sure I had and maybe still have nutrient deficiencies but never had that test done.  So, anyway the diagnosis for me was leaky gut with malabsorption.  I am working on gaining weight now, taking probiotics and digestive enzymes, along with l-glutamine to heal the gut.   Hoping for the best, I have been at this for over two years but finally feel like I may be on the right track. 

    #9342
    Polina Conrad
    Polina
    Member

    Jackie, where did you have the test for Leaky gut done? I am like you, trying to gain weight without much success, I did not know that malabsorbtion may be the issue. As a matter of fact the grain free diet has caused me to loose even more weight.

    Do degestive supplements you take helo you?

    Thanks!

    #9343
    Jacqueline Scarbrough
    Jackie Scarbrough
    Participant

    Well, I have only been taking the digestive enzymes for a little over a week.  HUGE that they aren't bothering me, because everything bothers me.  Since taking them I have been able to up the amount of probiotics I am taking.  I went to a functional medicine MD (I am in Michigan) and she ordered the digestive panel I was telling you about.  I believe it was through Genova Diagnositics…http://www.integrativepsychiatry.net/genova_diagnostics_comprehensive_digestive_stool_analysis_20_wparasitology.html

    I see that you can order it online, but the price was less for me going through the physician.  Also the results were very complicated and I feel would be difficult to interpret even for someone with medical background, it was overwhelming.  I know you can also order your own testing for malabsorption through enterolab…http://www.enterolab.com/StaticPages/TestInfo.aspx#stool_intestinal_malabsorption.  I had this done a year prior to the other test and even though I was on the proper diet little improvement.  Because my gut was leaky and no beneficial gut flora it has been a slow healing process.  Plus I feel like I've taken the long way around since I had trouble finding a doctor who would actually concede that anything was even wrong with me.  There are always excuses…”of course you're thin you are on such a restricted diet”, or “of course you're tired you're busy working and have four kids”, or whatever.  People were starting to think I was anorexic.  One doctor even told me to eat more cake, cookies, and pie to try to gain some weight!  Confused  I did also lose more weight when I first went grain free.  I have been grain, sugar, dairy, & soy free for over a year now.  I've only gained 2-3 pounds but I do feel better, just not completely yet.  I am really hoping that once I can stick with the full dose of probiotics and the digestive enzymes things will start to turn around. 

    #9344
    Diane Zides
    Diane Zides
    Member

    I took the intestinal permeability test from Genova Diagnostics. It was within normal range but outside 1-SD which is not necessarily abnormal. Results depend on renal function. Interestingly, my doctor wanted me to get a kidney scan since my uring sometimes contains blood and my bun was elevated 3 points above the limit suggesting kidney stones or gravel. Elevated levels of only a few points could also be from eating more protein, which I was doing a week or two prior to getting my bloods taken. It's possible the test could be off if renal function is impaired, and I recall reading one shouldn't take the test if that's the case.

    I am vitamin D, B 12, and folic acid deficient, and am using iodine as a patch to help my low thyroid. I am gluten/dairy/soy intolerant along with other foods, and have Candida, so I can't eat sugars, Chronic Fatigue Syndrome, and possibly Sjogren's Syndrome which I need to test for.

    Gluten made me heavy. I've lost 10 of the 16 lbs. I put on for a gluten challenge in less then 2 weeks. I'm not on enzymes yet since it's better to wait a while before including them when you are first starting a Candida diet. They'll probably be added soon, along with an anti-fungal medication. I remember this from 18 years back when I had Candida for the first time.

     

     

    #9351
    John Bane
    John Bane
    Participant

    Jackie said:

    Diane, what test did you have done?  Maybe you just haven't progressed to the point where your gut is leaky yet….?

    I am so glad about the special focus on leaky gut this week.  I have read so many testimonials about people who feel drastically better after going gluten free or grain free or paleo (or whatever) and those of us who don't start wondering “WHY not me!?”  As trying as it is at times to stick to this lifestyle and as careful as you have to be, it can be discouraging when you still do not feel good.  But the descriptions of leaky gut are very helpful and make it all make sense.  It's nice to know that even though it may be a slow road, the healing will eventually happen with the proper treatments. 

    The test I had done was a called a comprehensive digestive analysis, it was very helpful.  It showed that I did not have Candida (much to my surprise but I had already been on a very restricted diet for close to a year) but basically found out I had no beneficial bacteria and no digestive enzymes.  I had unwantedly lost about 30 pounds and developed dozens of food intolerances in addition to grains, sugar, dairy, and soy (that was of course a seperate test).  I had no energy and was having mood swings and very irritable.  I'm sure I had and maybe still have nutrient deficiencies but never had that test done.  So, anyway the diagnosis for me was leaky gut with malabsorption.  I am working on gaining weight now, taking probiotics and digestive enzymes, along with l-glutamine to heal the gut.   Hoping for the best, I have been at this for over two years but finally feel like I may be on the right track. 


     

    What is the name and brand of the probiotics and digestive enzymes you are taking?  Your symptoms sound just link mine.

    #9356
    Jacqueline Scarbrough
    Jackie Scarbrough
    Participant

    Hi John, I take the probiotics under “Gluten Free Products” then the “Gluten Free Supplement” tab on here (Biotic Defense).  The digestive enzymes I got from my functional medicine doctor are called “Orthomolecular Digestzyme” (they are gluten, corn and everything else I need to avoid-free)….the ingredients are almost exactly the same as the Max Digest Enzyme Support which is also found under that same tab.  If your symptoms are similar to what I mentioned above then maybe you have leaky gut too. 

    I was reading Karen Brimeyer's report over this past week and it sounds like I am doing everything she suggests other than rotating foods at this point.  I did rotate foods for awhile but that was really difficult for me.  I may have to go back to doing that, but I guess I'm trying to see if that is truly required before taking the leap again.  I'm wondering how critical that particular aspect of it is to healing the gut?

    #9437

    I have leaky gut and candida, or so I suspect from the thorough ELISA Comprehensive IgG Food Allergy Test + C. albicans, S. cerevisiae test I had done by Great Plains Laboratory.  They suggested that a rotating diet is very important for me. I would like to see a good rotating diet plan drawn up for me however. I am becoming very discouraged because there is so much I shouldn't eat. My list of allergies seems to grow everytime I eat.  I have never been on a Candida diet. How does this differ? I am losing weight. 103 lbs.now  5'3″, I really should not lose much more. I have just begun my gluten free diet but am not yet 100% grain free but trying.

     

    #9439
    Jacqueline Scarbrough
    Jackie Scarbrough
    Participant

    Rose, your symptoms sound similar to mine: intolerances, weight loss.  I know it is very discouraging.  So, you have had the ELISA test but not gotten the results yet?  I am 5'2″ and was down to around 90 pounds at my lowest point.  I am up to 98 now with the regimen I am on.  I did test negative for candida which surprised me.  For me it was leaky gut with malabsorption, no beneficial gut flora and no pancreatic digestive enzymes.  I had already been on a very strict diet by the time I had that test though so I thought maybe that's why the candida was negative.  I would encourage you to be completely grain free as I do not personally feel I would have ever started to heal on grains.  Once you start to heal your gut your list of food intolerances will likely decrease.  I still don't know the answer to my above question about if the gut can theoretically heal without rotating foods….I guess you could say I am doing a personal experiment though!  For me it was the most difficult thing to rotate my foods.  I still rotate as much as I can, but it's not 100% by any means. 

    #9440
    Jacqueline Scarbrough
    Jackie Scarbrough
    Participant

    Rose, your symptoms sound similar to mine: intolerances, weight loss.  I know it is very discouraging.  So, you have had the ELISA test but not gotten the results yet?  I am 5'2″ and was down to around 90 pounds at my lowest point.  I am up to 98 now with the regimen I am on.  I did test negative for candida which surprised me.  For me it was leaky gut with malabsorption, no beneficial gut flora and no pancreatic digestive enzymes.  I had already been on a very strict diet by the time I had that test though so I thought maybe that's why the candida was negative.  I would encourage you to be completely grain free as I do not personally feel I would have ever started to heal on grains.  Once you start to heal your gut your list of food intolerances will likely decrease.  I still don't know the answer to my above question about if the gut can theoretically heal without rotating foods….I guess you could say I am doing a personal experiment though!  For me it was the most difficult thing to rotate my foods.  I still rotate as much as I can, but it's not 100% by any means. 

    #9451
    Rita Bray
    Rita Bray
    Participant

    Hello Rose

     

    I am in Alabama also.  WooHoo.

     

    It is very important that you watch the tutorials on this website.  This site is about being true gluten free.  You will be surprised what a difference it will make when you are true gluten free. 

     

    So as Yoda says, “No try, just do”Cool

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