May 12, 2012 at 7:57 pm #8274
I suspected last October that I was gluten intolerant. I went on a traditional gluten free diet. I came into contact with Karen Brinkmeyer’s website and she introduced me to Dr. Osborne’s work. I did a genetic test and found that I had 4 of 4 gluten intolerance genes. At that point ( A couple of weeks ago) I decided to do the no grain diet which Dr. Osborne recommended. I am therefore going through a second gluten withdrawl. I am enjoying all the new food, but I am struggling with just the way my body seems to be working so hard. I am mother in a family with 7 children and feel overwhelmed by the responsibility inspite of the great physical trial. My family is not concerned with cross contamnation. They are old enough to do quite a bit of the cooking and insist they can only eat gluten. I am sometimes feeling really good, but my family seems to feel , Hey you should be better now! But I am swinging from really good to “I will never get through this.” I did antibody food sensitivity/environmental sensitivity tests which all work negative, but I am pretty sure I have quite a few. I have promises the Lord has given so I can cling to them, but struggle with the circumstance which I am in.May 13, 2012 at 10:43 am #9856MarthaParticipant
I’m sorry you don’t have the support of your family as you struggle with the changes in your life—especially when you are still not feeling entirely well. Two weeks is not enough time to feel all the benefits of a grain-free diet. You are probably also deficient in nutrients from poor absorption and have other inflammatory damage that needs to heal. Have you had a Spectracell test for nutritional deficiencies? Are your hormones (including thyroid and adrenal) in normal range? There is just so much more involved than simply cutting out grains (although that is the first and most important step!).
I share your frustration that the diagnosis of “Gluten Sensitivity” is not a diagnosis that is recognized by the rest of the world and is not a diagnosis that allows you to be “sick.” If you were diagnosed with diabetes or cancer, I’m sure your family members would be falling all over themselves to help you. As it is, the rest of the world expects you to function normally (and blames YOU if your aren’t) even though you are feeling lousy! Education is our only hope in that regard, I’m afraid.
As to cross-contamination, who does the food shopping and who pays for the food in your household? Would it be possible to put yourself first and take control of your kitchen? Can you stock only food you can eat and let the others buy, store, prepare, and eat gluten-containing food elsewhere (at a neighbor’s or at a church kitchen)? Perhaps you can negotiate with your family to do this for 6 months or a year. If the burden to go elsewhere becomes too great for them, your family members (who share your genes!) may actually start to feel better themselves if they start to eat only the food that your provide! It’s the “put your oxygen mask on first before helping your children” mentality. Do you totally have to sacrifice yourself and your health for the “comfort” of your family members? Do you have spiritual leaders whom your family respects who could intervene on your behalf?
I sympathize with your frustration both that you aren’t feeling well immediately, and that you don’t have the support of those who are closest to you. I wish you luck on your long journey back to health!
MarthaMay 14, 2012 at 8:13 am #9857
I am having Nutri-Spec Testing that discovers what nutrients I need. I believe I have been taking many of the nutrients that I need for the past 5 years. This got me out of undiagnosed heart trouble and added to my energy level and general well being. It told me to cut back on grain. But we did not know I was gluten intolerant. I am very pleased with Nutri-Spec. Maybe not eating gluten will help. I am interested in Spectra Cell, but I am not sure what to do. Should I stop taking my supplements for the test? Or should I do the test to see if the supplements are covering me well? The price of the supplements is a strain on the family. Since they are unconvinced of the severity of the problem I am in a rough spot.May 14, 2012 at 8:14 am #9858
I would like to answer some questions privately.May 14, 2012 at 8:37 am #9859
I can’t see two of my other posts so I would just like to add that my blood count looked so good that the MD did not want to hastle herself with the Spectra Cell. I will however add that I had run out of my iron supplement when I discovered it had wheat germ, and iron was low.May 15, 2012 at 5:59 am #9860MarthaParticipant
Regarding the Spectracell, my experience with Dr. Osborne is that he checks it every 6 months in the “healing” phase. He recommends taking supplements for the nutrients you are deficient in and continuing those supplements for 6 months until the next test. If the level returns to normal, then you stop the supplement. Retesting occurs 6 months later to make sure you are absorbing the nutrient from the food you are eating and keeping your levels in the normal range. If not, you go back on the supplement and the cycle starts all over.May 17, 2012 at 10:32 am #9867
. My thyroid has been found normal.
This is my problem in a nutshell… “As it is, the rest of the world expects you to function normally (and blames YOU if your aren’t) even though you are feeling lousy!”
I do purchase the food for the family. Interestingly enough I forgot to order grain last month. I can’t imagine being able to order it next month.
This is a question that searches my heart. ” Do you totally have to sacrifice yourself and your health for the “comfort” of your family members?”
“Do you have spiritual leaders whom your family respects who could intervene on your behalf?” My husband is a very good man, but he simply does not want to hear another thing about my health problems. I don’t think that he understands or believes the depths of them. I cannot explain because he shuts it out. He would say that I am obsessed and striving after an idol. My own life being the idol.
I feel like I should applauded for walking accross the room, but others are disappointed in me.
I expect this will all work out. For now I would like to crawl under the bed until my body finishes some of its work. On the other hand, when I am weak; it is so good to have someone that needs you. I have reasons to keep going and succeed. I have plenty of them.
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