November 17, 2010 at 2:35 pm #7884
I'm new to the site and just wanted to introduce myself. I have had ongoing health problems for about 14yrs. I had no diagnoses for most of that time. Two years ago, I got my first diagnosis — microscopic colitis (lymphocytic). Two years ago, I also got my second — cervical spondylosis C5-C6, and two months ago, I got my third — Hashimoto's Thyroiditis. I'm taking nothing for the colitis, because steroids did not sound like I good idea to me and I thought there had to be a better answer. I get non-force treatment for the spondylosis at my chiro. I'm taking Naturethroid for the Hashi's and am up to 1.5gr and will up to 2gr next week, but think I may hit a wall with the dosing soon, because my ferritin levels are very low (Started a low dose iron supplement a few days ago), and the B12 supplement (methylcobalamin) I also need gives me heart palpitations (probably because of the low ferritin).
I started trying to find out what was wrong with me on my own about 10yrs ago, when doctor's had no clue. The first success I had was going on the Specific Carbohydrate Diet a little over 5yrs ago. I felt better on the diet than I had in a long time. Not 100%, but better for sure. I did not like the social isolation of it though. It was difficult for me to follow. I got pregnant after being on this diet for about 9 months, and the colitis flared for 3 months, and I got really weak and tired and felt like I just couldn't stay with the simple carbs only, so I went off the diet. Ate whatever I wanted and didn't feel too bad other than being tired.
A few months after my daughter was born, I started having plantar fascitis, and joint pains. I stopped the wheat, and mostly that went away. It's back now even though I'm off the wheat again. I haven't dropped the other grains again, but think I will give it a try again. I tried going back on the Specific Carbohydrate Diet(SCD) earlier this year, and it didn't work nearly as well. I've attributed that to the Hashi's.
It all started with nerve pain in my chest, and has just progressed to generally feeling awful. I have been better though since going on the Naturethroid. I still react poorly to foods and have IgE allergies to wheat, peanuts, and baker's yeast. I'm doing oral desensitization for the peanuts and yeast, and decided not to with the wheat. I've decided to just behave as if I'm celiac, even though I've never had a single test come back even close to positive. I've done 2 blood tests (worthless), a fecal test (came back negative), and had duodenal biopsies (normal). The only test that showed anything was the genetic test – I have two gluten sensitivity genes (gluten genes: HLA-DQB1 Molecular analysis, Allele 1 0202, HLA-DQB1 Molecular analysis, Allele 2 0602, Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6)). So, I've decided I'd be better off without the wheat. So, here I am. I had all my dental work redone about a year ago, in an attempt to feel better. It did help some, too.
Pieces of my puzzle:
Hashi's, Gluten sensitivity, mercury
Now, if I can just coordinate what I need to do about this. I have been resistant to going on too restrictive of a dietagain, because the few times I've been restrictive, it's also been very isolating. I'm also an emotional eater, so it leaves me raw and vulnerable to not have my comfort foods (most of which involve sugar and chocolate of some sort). I don't want to be tied to my kitchen, and I don't really like to cook. I want to have a new and better attitude about this, but I'm just not there yet.
Sorry so long –Thanks for listening.November 17, 2010 at 5:02 pm #8835
Welcome to the site. Making the decision to go completely gluten free is not an easy one except that it sounds like you already know the answer. You feel better when not eating gluten. I am here to tell you it isn't always easy, it is a one day at a time lifetime journey. One thing that helped me was Dr. O's videos and one of them said that we must eat to live and not live to eat, boy did that make sense to me. I have tried to adopt that and I try to just make sure I have stuff cooked ahead I can have. One day I had cooked a turkey breast and burnt it and it was very dry, but it was all I had, so I ate it any way and said hey “eat to live”. I felt satisfied when I was done, it wasn't my most enjoyable meal but I made it through it. I boil eggs, I keep veggies cooked all the time (I have colitis too, so too many raw veggies are not good for me), I keep a roast (cooked in crock pot) and chicken on hand almost all of the time. Sometimes I don't plan ahead so I try to buy boneless skinless chicken breast that can be cooked in less than 20 minutes, with a little garlic powder and sea salt and steam some veggies or even throw in micro if you must and viola a meal. My family has learned not to complain if they want to have their food cooked for them they eat what I do. I sometimes (if I'm feeling strong and able to resist) make them potatoes. You can do this and you have support from here if you need it, feel free to go to my profile and find my email address and email me anytime.
LoriNovember 17, 2010 at 6:46 pm #8837
Welcome to the forum! Thank you for sharing your story with us. Hang in there. You will find a lot of good people and information here. You might want to check out our membership section as well. There is a 5 hour video tutorial on going gluten free. The videos also talk about appropriate lab testing and protocols to regain your health.
All the best,
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