May 21, 2010 at 2:36 am #7771
I am a mother to 2 children. We are all gluten sensitive and with a seemingly amount of other allergies at the moment. I found out i had sensitivities when pregnant with my 2nd child. who is now almost 5. She was symptomatic since birth.
my son has started to develop symptoms and reactions as well this last year at age 7.
I overcame chronic fatigue syndrome, asthma and some other problems by changing my diet.
My daughter is having some issues with severe bowel problems now. her dad refuses to feed her gluten free even though in our divorce decree he agreed to do it 🙁 I have asked the drs we have seen about allergies being tied to this problem and they have offered absolutely no HELP! They dont seem to think there is a tie but i am sure there is. She is very constipated, very clogged up and her colon is very full (an xray was taken). She has is hardly having any bowel movements. when she does they are very very small. If anyone has anywhere they could point me that would show research showing that gluten intolerance can be tied to bowel issues. would be much appreciated. Their dad is fighting me and trying to get them to go back on a “normal” diet as he feels that would be better. My daughter already throws up when she gets wheat. Corn she gets very congested, lethargic, can’t breathe. The list goes on. But her reactions are already severe.
Thanks for listening and i was very excited about this forum! thank you for all your wonderful information!May 21, 2010 at 6:45 am #8559
Welcome to GFS Ariella! I am sorry to hear about your predicament. It would be smart to get your daughter a formal diagnosis and pursue the matter more strongly in court. Unfortunately, that is the only way you will be able to fully protect your daughter. We will continue posting new information for you.
Again, welcome aboard!
GFSMay 21, 2010 at 7:32 am #8560
THank you! i am trying. the drs for some reason can not see the tie between the allergys/s/sensitivities and her colon/bathroom problems. I dont get that. For me, it was clear to me that is what it was b4 i even took her in.August 22, 2010 at 11:25 pm #8727
I don't understand how someone can't see the importance in this. I read your story
and it sounded familiar and I was wondering why and then it came to be
Jenny McCarthy talks about her THEN husband doing the same thing with their
son in her book “Louder Than Words”. A very good book on Autism. She found that
the glutens (etc.) were causing him to have Autism. Amazing must read book!
My girlfriend passed away young, and left behind a beautiful son who has Autism. I was drawn to this book and now I want to get her others…good reading and learning.
I agree with D. O here, and if you can see D. O maybe that would be worth your travels.
If you get your child diagnosed and he still continues to feed her wrong wouldn't that be considered endangerment? Hmmm?
I wish you the best.August 23, 2010 at 9:25 am #8729
Thank you Shelley. I will have to see if i can find that book at the library. It would be considered endangerment if he continued to do it. but the question is what testing to do to find the “link”. I am considering doing the genetic testing but still ahve questions about how that works.September 3, 2010 at 2:00 am #8741
Do a lot of research on line, I have heard that there is a new test that can tell if someone has a problem with glutens even if they are eating gluten free.
I wish you the best with it all keep us posted here.
🙂 ShellySeptember 3, 2010 at 4:00 pm #8745
Genetic testing is definitive. If you have positive genetics for gluten sensitivity, then you will react to gluten.September 3, 2010 at 4:28 pm #8746
would it hold up in court? is it something i can read on my own or would i need a dr to confirm it? please let me know more details. I am really considering it for my daughter if it woulld be seen as a yes this is a firm answer. They wanted me to do a scope on her but she has been mostly gluten free since a few months old and she gets really very very sick. I am interested in hearing more. Please fill me in. Thank you.September 8, 2010 at 9:06 am #8748
What will and won't hold up in court can vary from judge to judge and lawyer to lawyer. There are never any guarantees. I have had a patient get a court order with genetic testing being positive. Mayo clinic has started to run standard HLA-DQ testing for all patients with IBS. I would advise you document any gluten encounters that your daughter has including dates, foods eaten, symptoms suffered etc.September 8, 2010 at 9:14 am #8750
Yes i have been doing that since my ex moved out 2 1/2 years ago. I will look into the genetic testing. After you get it done, does it tell you how to read it with the results? the kids dr didn't really know much about it. I had asked him about many months ago.September 8, 2010 at 9:20 am #8753
If you get it done through GFS, it comes with an instructional video and results interpretation. If you use your family physician, the interpretation will only be for celiac disease risk quantification, not for gluten sensitivity. Feel free to use the references on the website (most are actual medical journal studies).September 8, 2010 at 9:21 am #8754
is there any documentation anywhere that i could print off that would show scientifically that DNA testing does show gluten intolerance. something that would give a judge knowledge about the subject?September 8, 2010 at 9:23 am #8755
ok. yes i was planning on having it done through GFS. That is good to know it does come with interpretation. I greatly appreciate your help! i will try to navigate the site more and see if i can find the science journal info you were talking about.October 6, 2010 at 10:48 am #8775
yay. did the test and she had a double gene for it. NOW hopefully this will be enough. I am so thankful! i KNEW she was gluten intolerant. that is my update. still in court battle. Hasn't gone to hearing yet, but hopefully this will give me enough to get her protected!October 6, 2010 at 10:00 pm #8781
I guess i didn't put anything about myself in here. I imagine that i am probably also genetically gluten sensitive – possibly celiacs. Though i am not so worried about diagnosis. I KNOW gluten doesn't make me feel good so i stay away from it. I developed asthma, endometriosis, hypo-thyroid, CFS, bad bad acne… all at a young age 19 to 20. Drs at that time couldn't help me so i went off on my own path and found a change in diet was able to heal most of those things. I cleaned up my diet. To eating mostly whole foods – fruits, veggies, beans, fresh juices, green smoothies. Basically i cut out all the grains and sugars. I lost a lot of weight and felt better than I had in a LONG time. Pregnancies and stress with my ex has been hard on my body and my job (i teach group fitness classes) and i believe i am fighting adrenal fatigue at hte moment. So that is a little tough. I have really struggled with gluten craving since my ex filed the court stuff in april. Prior to that i had no trouble with avoiding gluten/corn/grains….. So that would probably also explain why i dont feel as good as i did. I am trying to find other ways to handle my stress and give me a pick me up instead of turning to food. Anyhoo. staying away from the grains really does work and i am so thankful i was led to this place by following instinct and listening to my body so i am better able to help my children with their sensitivities/intolerances.
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