Hello….I'm here to get answers for my daughters health issues. My daughter is 20, Downs Syndrome and born with hypothyroidism (hashimoto's). She was diagnosed with Type 1 Diabetes in August, 2009. She started having symptoms of fatigue and was later tested negative for celiac via the basic blood testing. She had 2 endoscope and 1 colonoscopy and after last endoscope there was some damage that showed up, although it seems still iffy. She later had genetic testing done and she was highly likely to have it. Since then we have been on a gluten free diet with mct oil and finally added enzymes to help digestion. It appeared like her albumin was coming up….came up to 1.6, then she was glutened and came tumbling down to .9. She was in the hospital for 4 days on tpn and came home with tpn for about 2 weeks. After removal of tpn she went down to 2.5 and just this last week 1.9. It appears we are going down again. Her symptoms have been edema, ascites, headaches, fatigue, and mood swings. She doesn't really know how to explain how she feels, so everything is based on how she looks which makes it tough. She has high tolerance as it shown when her blood sugar went up to 787 and only complain was headache and drinking ice water.
I'm hoping to get on the right track before my doctor wants to put her back on tpn or on steriods and immunosuppressed (think that's the name) drugs.
I would look into the paleo diet or GAPS diet. There are many websites you can research this. Good luck, you must be totally frustrated. I would also look for a functional medicine Doctor. They are much better at looking at what you eat as a possible cause.