Home of Gluten-Free Society Forums All Gluten Free All The Time Hasimoto’s disease and hypothyroidism

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  • #8250
    Diane ZidesDiane Zides
    Member

    I found Dr. Datis Kharrazian’s website, http://www.thyroidbook.com and his book, “Why Do I Still Have Thyroid Symptoms When My Lab Tests Are Normal?”
    I was impressed with his firmness about gluten being the culprit in this disease, and how the whole endocrine system is affected if we are intolerant of the foods we’re eating and what in time it does to the thyroid gland and how that affects digestion. He says there are 24 foods that cross react with gluten, most are grains, but other foods that are responsible can be the ones most people are intolerant to, like eggs, coffee, nuts, beans, the nightshades: potatoes, peppers, eggplant, tomatoes, etc.

    I have Hasimoto’s, and 2 tiny nodules on my thyroid gland. I’m currently swinging between hypo and hyper. Gluten has affected my thyroid which has caused multiple food intolerances and other autoimmune diseases. This book makes it clear that sugar imbalances are a problem, and creates more problems if you allow it to continue. I could never understand why I felt hypoglycemic so often and nothing would show up on my tests. It’s hard to live feeling dizzy and breathless with no energy as often as I did.

    His diet recommendation excludes all grains, sugar, alcohol, coffee, nuts, eggs, beans, etc. I’m on the same diet except mine prohibits fruit for now since I have Candida. I know this diet works to heal. I’ve done it twice before, and I’m doing it again now. Too bad I allowed grains and sugar back into my diet over the years not knowing how they were affecting my sensitive system.

    I didn’t know about genetic testing at the time I did a recent gluten challenge, or I wouldn’t have done it. In the 5 months I ate more gluten then I did in the last 30 years, it sickened my thyroid in that short time, and gave me additional autoimmune diseases. I’ll never go near any grains ever again. I you have thyroid disease, I recommend this book highly. It will help you see just how imperative it is to not eat grains.

    #9763

    Hi Diane,
    Nice post. I too have Hashimotos. I was dignosed with hypothyroidism quite a while back, but just a few months ago the diagnosis for Hashimotos was given. I also have a couple of small nodules on my thyroid revealed by an ultra sound test. Sadly, instead of getting the help I needed, regular doctors just put me on anti-depressants, sleeping pills, and anti-anxiety drugs, all of which made things much worse. I haven’t taken any medication for Hashimotos at all, thinking I could figure out the under-lying cause and it would go away. Needless to say, I’ve been walking around with Hashimotos for a really long time now, and it’s a very, very miserable existence Frown I started on a traditional gluten free diet a while back, but just recently decided to get serious and go true gluten free. I’ve been following the Paleo Diet about 90-95% of the time, but it’s time to move that up to 100% if I ever truly want to get well. I had a test done by ALCAT to determine foods I’m sensitive to, so I could remove them from my diet. The list was very long, and I’m sure gluten had a lot to do with it. I’m also following the Jeff McCombs plan for dealing with Candida, and have done lots of cleanses, like liver, parasites, metals, etc. Until I cut out all grains though, I probably will never get better. I also need to get on Naturethroid or Armour for now until I can get better, or I will never feel good again. Thanks for the info on Dr. Datis Kharrazian’s website. This makes perfect sense to me now.

    Best wishes to you in your quest for healing.

    Jeff

    #9765
    Norbert Banaszak jrredbird
    Member

    While we don’t have any thyroid/Hashimoto’s issues that we are aware of, our research has led us to a discovery that may help you both greatly. Our findings (without taking the vitamin deficiency tests for proof) led us to believe that we possibly are deficient in vitamin B-12 . This deficiency is common in people with the CD/GS disease and can cause all sorts of problems because gluten can prevent the absorption of B-12 from our food. We are both taking a Sublingual B-12 Methylcobalamin supplement that is helping a lot. My pollen allergies and toe neuropathy issues, along with brain/nerve problems causing insomnia and anxiety have lifted. My wife is having better circulation with no tingling in her fingers with more energy too. My research before going on the B-12 shows many disorders that improve and maybe totally resolve, and thyroid/Hashimoto’s discussed that is one of the problems that “could possibly” come from the deficiency of B-12. I’ll give the link to one of Dr. Osborne’s reports that shows his experience with B-12 deficiency in his patients and if you ask him I’m sure he will give further information/facts/testing/advice about how the B-12 supplement can help you and I see that he has them available to order from him too. Reports show B-12 doesn’t store up in our fat and even if we aren’t highly deficient the extra B-12 will not hurt but just pass through in the urine. I do remember that other’s who have taken a B-12 shot really get a boost and the sublingual is supposed to be as effective?
    Norb
    It appears that the link to the page doesn’t work here like when I e-mail so just go to your dashboard and in the “search” box type in; “anemia and low platelets”. That should get you there.

    Anemia and Low Platelets – Is Gluten Sensitivity a Cause?

    #9767

    Thanks Norb,
    I’ll check into the B-12 issue. I have read in a couple of places that vitamin deficiencies like B-12 and Vitamin D can be really bad for people. I know magnesium deficiencies are also pretty bad too. I will be going to a functional medicine doctor here in Arizona in a few days to have a lot of testing done. I’ll have him checking thyroid function, vitamins and minerals, etc. I know that recently I’ve been concerned about whether or not some of the supplements I’ve been taking contain any forms of gluten. I guess I’ll have to just order all of my supplements from Dr. O’s site to make sure they’re safe.
    Thanks again for the reply.

    Jeff

    #9768
    Norbert Banaszak jrredbird
    Member

    Sounds great and hopefully you’ll be getting much better soon. Taking those tests will get the correct vitamins you need to regain good health. I can’t guess how many bottles of vitamins,probiotics,etc. are sitting in my cabinet…totally useless. Some of them caused me immediate negative symptoms and some were more subtle and only removed after I did more research. There are a lot of the cheaper supplements that are made with gluten for the filler. Also avoid the yeasts in your food and probiotics. It is probably better to eat some Activia yogurt occasionally for the good bacteria? As for safe supplements, I think you’re correct that Dr. O has available several necessary supplements and looks like some he has had specially formulated for patients with the CD/GS issues. Sure would be better than the “trial and error” and cabinet full of unsafe junk method!Laugh
    Norb

    #9769

    I’ve been going through the same thing. Some supplements make me feel worse right away, and some later. It’s hard to know which ones are the culprits if you take a lot of them each day. I also have a cabinet full of supplements, and 2 bags of ones I can’t use anymore in my garage. What a waste. I do know one thing for sure, “Trial and error” can mean lots of unnecessary suffering. Better to go to a well trained professional and have him tell you what your body needs, and then get them from a good reputable source, like Dr. O’s site.

    Thanks.

    Jeff

    #9770
    Rita BrayRita Bray
    Participant

    Just thought I would mention that Dr Osborne does phone consultations. For me this has eliminated all of the guessing about what works and does not work. I have bags of supplements that I was taking that were not creating the results that I wanted. I have reduced the number of supplements to a very small amount compared to what I was taking.
    I feel so much better. Sometimes I am amazed at the results that I have achieved.

    Be Well

    #9774

    Thanks Rita. This is a very good suggestion. I think I’ll be calling Dr. O very soon. In fact, I’ve actually thought of driving from Arizona to his office in Texas, since he understands so much about so many health issues. He obviously cares a great deal about all of us, or he wouldn’t be doing all the work he does concerning getting the word out about the destructive properties of gluten.

    Thanks again,

    Jeff

    #9779
    Diane ZidesDiane Zides
    Member

    I am deficient in B12, Vit. D, folic acid, and magnesium. I’m not digesting my food which doesn’t help me build back nutritional deficiencies easily. I recently had gastritis from eating a hidden intolerant food, which further disrupted my stomach lining function. After 4 weeks of healing from it, I had thyroiditis yesterday for the first time in ages. I might be far more sensitive to gluten then I realize. I found a pasta noodle in my steamed spinach days ago, and was fatigued for 3 days from it. My thyroiditis could have been gluten whiplash for all I know. I’m not willing to gluten myself again to find out if this is the case. That would be a bad idea and not very good for my thyroid function.

    I’m aware supplements can be tricky and that the body may not recognize them completely like it does food. I was considering doing the Gaps diet to heal my stomach lining, unless the caveman diet which I’m on will do the job just as well even if it takes longer. As far as I know, my adrenal function was ok when tested this past July. It’s hard to know which approach to use. There are so many opposite opinions on what to do. Some doctors say we need a lot of iodine, some say it’s exactly what we should stay away from if we have Hasimoto’s. I’ll look into Jeff McCombs Candida therapy. Thanks for that info. It’s possible I need higher amounts of B12, etc. now. I haven’t been tested the last 4 months since I spent that time in Florida away from my doctor.

    #9785
    Norbert Banaszak jrredbird
    Member

    Diane, the failure to digest and use some of the vitamins is a problem and if we can’t get the vitamins from food why would the pill be any better. We are taking B-12 in the best form of Methylcobalamin and Sublingual. You put the tablet under the tongue and let it melt and it absorbs through the mouth tissues straight into the blood stream thus avoiding the digestion problem. Likely you can get most vitamins in the sublingual form and just have to be sure there is no gluten filler in the pill.

    #9787
    Diane ZidesDiane Zides
    Member

    I couldn’t find a subligual B12 out there that didn’t contain a sugar I can’t have for the Candida, or mannitol, which gives me terrible cramps and the runs. My doctor probably has one I can take. I just have to get home to see him. I’d prefer all my supplements be sublingual actually. If that’s possible, that would be great. I’m exploring histamine intolerance since those foods do bother me. Candida isn’t helping since it makes histamine levels worse.

    #9797

    Diane,
    Check Dr. Mercolas website. He makes a liquid B12 supplement in a convenient pump spray bottle. It’s called B-12 Energy Booster, and is listed as 100% all natural.

    Jeff

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