Gluten-Free Society Home Forums All Gluten Free All The Time Genetic testing question

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    Peter Osborne

    I have a question about genetic testing: I read that 2 genes are tested. Both the HLA-DQ alpha 1 and beta 1 genes are measured. So those are the genes that tells you if you have gluten Sensitivity and or have Celiac Disease, right? I read on this forum that some have tested some more genes. Why is that and what do those genes tell? Is it possible to see a test result from an anonymous person just to see how the test result looks like?

    Peter Osborne

    Ok, I just ordered the test so I will get the genetic testing done. 

    I’m so excited and also nervous. Pretty sure that it will tell that I’m sensitive (I’ve self diagnosed myself due to symptoms). But not sure enough to not have the test done and maybe it will tell more. It will sure let me know exactly what I need to do. 

    Still looking forward to Dr. Peter Osborne’s, or someone else’s, answer here to my question above.


    Hi Line Kolbe!

    I wish I knew more about genetic testing and how to correctly answer your question. Why are you wanting to get tested? Is it to confirm that you have a gluten intolerance because you have been experiencing symptoms of being gluten intolerant, want to verification of your concerns or for peace of mind? Everyone’s reason is different :)

    I don’t have to ability to do genetic testing for my clients so if they have concerns about being sensitive, having Celiac or intolerant, I will have them do an elimination diet for about 10 days. An elimination diet is when you eliminate the trigger food from your diet for at least 10 days and then slowly introduce it back into your diet and see if you feel any better or worse. It’s the easiest way to test your body for sensitivities to certain foods. If you want the peace of mind of actually being diagnosed, then further testing, like the one you ordered, would be beneficial to have.


    I have a colonoscopy preformed a few years back (to test for celiac. I didnt know there were other ways to test, like genetically) and it was determined I do NOT have a gluten intolerance or Celiac from that specific test. However, when I decided to go gluten free for good a few months later, that’s when my symptoms started to decrease, my health slowly began to come back, and I knew I didn’t need a test to confirm my suspicions. I felt better and for me that was enough :)


    Hope you find the answers your are seeking :)

    Peter Osborne

    That’s how I self diagnoses myself too. But I’m not 100% sure even though I maybe should be. 

    What I need is a black and white answer on a piece of paper saying that I can’t eat it.

    Now it’s fine most days, but then when the cravings come and I’m still not 100% sure I make up the excuse that I might not be sensitive (even though I have the symptoms). It’s pretty irritating to have a doctor’s blood test say you are not sensitive, really really love grains and then eliminate them in your diet and not have a valid enough reason. Not valid enough for me when the cravings hit… And also not valid enough for my family. If I get it on paper and a test says that I can not eat it it will be so much more easy to just not do it.

    Makes sense? 

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