Forum Replies Created
May 30, 2012 at 12:34 pm in reply to: Has anyone used essential oils to reduce symptoms of glutening? #9903
I bought some doTerra essential oils and tried giving my daughter digestzen. I gave it to her occasionally, because I was too scared to give her too much since at that point she was really swollen and had really low albumin. She’s currently on tpn and hope to restart the essential oils as well as juicing. What do you recommend? I have peppermint, ginger, lemon, and a few others.
My daughter had genetic testing done…..I still do not really understand what is means, just that she is very high risk. Her test showed the following:
Celiac Risk Genes Detected: DQ2.5 (HLA DAQ1*05:DQB1*0201) and DQ8 (HLA DQA1*03:DQB1*0302) I think the DQ”B” and not DQ “8” but it can be since copy is hard to read.
Can you tell me what it means?May 9, 2012 at 10:12 am in reply to: Celiac, Type 1 Diabetes, Hypothyroidism (non Hashimoto), and Downs Syndrome #9854
I believe it is, but it’s being delivered through the blood stream not the gut….does that still matter?May 8, 2012 at 4:54 pm in reply to: Celiac, Type 1 Diabetes, Hypothyroidism (non Hashimoto), and Downs Syndrome #9852
Hope this isn;t a duplicate post.
Additionally, her pre-albumin today came back at 11. Not good….we will be admitting her. Gastro dr performing an endoscopy tomorrow morning then probably put her on TPN. She is gluten free, grain free, legume free, egg free, dairy free, sugar free, soy free, corn free (except probably her thyroid medicine and maybe lasix), minimal fruit except plenty of berries.
Just started her on l-glutamine 6 grams a day broken down 1/2 morning and 1/2 early evening. Give her sole (salt water made out of himalayan salt) to get her ph balance to normal range.
Now what else can I do? I guess overriding her gut is good but putting her on TPN maybe give it a break so she can absorb. Any other thoughts you may have?
May 8, 2012 at 4:48 pm in reply to: Celiac, Type 1 Diabetes, Hypothyroidism (non Hashimoto), and Downs Syndrome #9851
Additionally, my daughter’s prealbumin is down to 11. We will have to have her admitted to hospital and they will probably put her on TPN. I guess it’s good that the nutrients are bypassing the gut/intestines, but should we completely take her off food during this time to allow it to heal? Her c-reactive protein test came back high 3.2 (should be less than 2.4) and I think with all the inflammation in her body, she’s not absorbing much and this can be the reason why her pre-albumin is low. We have her on grain free, gluten free, egg free, dairy free, soy free, corn free, very little fruit, and stevia or xylitol and still to no prevail. We also added enzymes and l-glutamine this last week. I was hoping to see her albumin come up, but hasn’t been the case. Where do I go from here????May 7, 2012 at 6:52 pm in reply to: Celiac, Type 1 Diabetes, Hypothyroidism (non Hashimoto), and Downs Syndrome #9850
Dr. O…..thank you for your response. When you say no sugar….are you referring to actuals sugars or also fruit? Is stevia and xylitol ok?
Genetic Testing, inconclusive biopsy, and elimanation diet.March 26, 2012 at 12:14 pm in reply to: New TRUE gluten free cookbook. It is dairy free and sugar free as well. Good recipes! #9806
Where do we purchase? I checked Amazon and don’t see it. Please advise.